tag:blogger.com,1999:blog-2464163302553827777.post6388629752000539832..comments2023-11-02T13:52:32.145+02:00Comments on Chronicles of an NF survivor: NF, the gift which keeps on givingSarah Kleinhttp://www.blogger.com/profile/17381531433867772947noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-2464163302553827777.post-65688019225856511972014-11-20T13:37:50.465+02:002014-11-20T13:37:50.465+02:00Thank you for your riteous indignation on my behal...Thank you for your riteous indignation on my behalf! it does confim for me that my feelings are founded, and I am not asking for too much. Sometimes I can slip into thinking that I should be more active than I am, it'd be for my own good. Believe it or not, I do trip into that thinking sometimes. Not often. No choice but to negate that thinking as soon as I start to do too much. My body reminds me loud and clearly. Having chronic pain stinks so much. The fact that it is unseen makes it harder to deal with, believe it or not. When something happens like with this va'ada, it can actually cause me to wonder if I should be more grateful for what I do have, and "suck it up" when I am pain. Horrible that my own brain can do that to me, right?<br /><br />I am not in that mindframe now, thank Gd, but it does happen. Also, I think it's because *I* can't see my handicap that I also fall into the "stinkin' thinkin' " again. Even though I know exactly what I went through, and how I got into this pain situation.<br /><br />Anyway, thanks for the confirmation. And I also believe that when certain types of people get to the beit din shel mata, they will be judged exactly how they should be. In the meantime. I am seeking advice from the organization which is here in Be'er sheva called the "irgun 'lshivyon v'tzedek l'nechim" (organization for equality and rights for the handicapped). I've been to them before, they can pull for the handicapped person when they can't pull for themselves. Don't know where that'll lead me.<br /><br />Shabbat Shalom, sweet neshama you are.<br /><br />SarahSarah Kleinhttps://www.blogger.com/profile/17381531433867772947noreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-65347984798826203372014-11-20T13:34:02.915+02:002014-11-20T13:34:02.915+02:00Man, Sarah, I just want to punch those idiots from...Man, Sarah, I just want to punch those idiots from that va’ada right in the face! How DARE they?! Who set them up as G-d? <br /> <br />And you know what, they know that people who come to them seeking help because they have serious challenges won’t have the umph to try to fight them. Ooh, it’s so maddening and so unfair!! What’s wrong with those people?! When I meet up with this type of injustice, I try to comfort myself and say: there’s a beis din shel ma’aleh, and I will leave it to HaShem to take care of them. They’ll get theirs. It doesn’t undo the injustice, but sometimes I feel I just have to leave it to HaShem to deal with since I don’t have the – fill in the blank – the power, the time, the authority, the energy … to deal with it to try to make things “right.”<br /> <br />Keep on truckin’, honey, and keep your chin up.<br /> <br />Love,<br /> <br />JolieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-11330520312234408132014-11-20T00:19:10.856+02:002014-11-20T00:19:10.856+02:00You help by being one of my main supporters emotio...You help by being one of my main supporters emotionally. That is more help than you realize. Sorry I am getting all legal on you about the driving... I gotta be 100% straight when it comes to driving my children around. I wish I could use your offer, though. When you get your license renewed, we'll tawk!! :)Sarah Kleinhttps://www.blogger.com/profile/17381531433867772947noreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-23912464938943205452014-11-19T14:44:21.572+02:002014-11-19T14:44:21.572+02:00I feel so helpless after reading this. I want to h...I feel so helpless after reading this. I want to help you so much, I wish I could relieve you of the constant gnawing pain, even for one day. (maybe I can help you with the driving-let's talk).<br />KenKenhttps://www.facebook.com/kenneth.quinn1?fref=ufi&pnref=storynoreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-27368387995523345642014-11-19T14:42:14.374+02:002014-11-19T14:42:14.374+02:00Thanks, Edna. That is the idea... to get onto a pa...Thanks, Edna. That is the idea... to get onto a pain med that has lower statistics of the sort of side effects I am trying to go away from. <br />Also, I do plan to get some support for the treatement at the va'ada. There is an organization here which gives support to handicapped people to navigate the system. I'm trying to get over it.Sarah Kleinhttps://www.blogger.com/profile/17381531433867772947noreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-62167040135766422642014-11-19T14:38:38.384+02:002014-11-19T14:38:38.384+02:00I am very sad reading this; I know that wasn’t you...I am very sad reading this; I know that wasn’t your intention. I agree that your review by the va’ad was totally inappropriate. Once you receive their “official” response I hope you intend to appeal.<br /> <br />I understand your desire to get off all pain meds, but that may not be realistic. L Perhaps you could focus on an intention to be on paid med that is effective and has very little, if any, effect on your daily life. I know, easy for me to say.<br /> <br />Sending positive energy your way.<br /> <br />Take care,<br />EdnaEdnahttps://www.facebook.com/edna.oxmannoreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-73087607158409524722014-11-19T14:37:04.688+02:002014-11-19T14:37:04.688+02:00I hate it that this had to happen to you.
Hugs. An...I hate it that this had to happen to you.<br />Hugs. And more. <br />xxx meRivka Klein- de Graafhttps://www.facebook.com/RivkaKdG?fref=tsnoreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-67515694405129387902014-11-19T14:35:22.352+02:002014-11-19T14:35:22.352+02:00Thank you, Jackie. I am *still* upset about it. I ...Thank you, Jackie. I am *still* upset about it. I gotta let go, the world is full on injustices, you know?<br /><br />Had a good meeting with Dr.Z, things are in process. I'll keep posting on the blog, of course. :)<br /><br />Luv u<br /><br />SarahSarah Kleinhttps://www.blogger.com/profile/17381531433867772947noreply@blogger.comtag:blogger.com,1999:blog-2464163302553827777.post-23191400950492986952014-11-19T14:34:41.806+02:002014-11-19T14:34:41.806+02:00Sarah: It is a shame that panel of doctors was ar...Sarah: It is a shame that panel of doctors was arrogant enough to believe they can "see" a disability. I'll pray for good results (at least a small stipend), but I'll pray harder for Dr. Z to come on board to save you the travel time, and that the medicine changes help. Hugs, my dear. <br />JackieJackiehttps://www.facebook.com/jackie.pellegrino?fref=ufinoreply@blogger.com