Showing posts with label Excedrin. Show all posts
Showing posts with label Excedrin. Show all posts

Sunday, May 29, 2016

My night with the Rocket Man (and other less important details....)

That was FUN!!!


Elton John, as seen from the stage in Tel Aviv
Elton John, 69 years old, still has it! He may have chickened out of using his upper range, or it may have betrayed him in his later years, but yes, he still has it. He can still rock! It was a great concert. He wore a blue sequined long dinner jacket, matching blue pants with sparkly stripes, and bright pink platform sneakers. Oh, and of course, sun glasses. Not the big plastic white, or red ones; no feathers or rhinestones, his glasses have mellowed over the years, but he's just as iconic as ever. Much of the concert was songs that I knew. Each piano introduction sparking immediate memories of the song coming. That was great. He has a lot of new stuff, too, and I am not familiar with that. His newer stuff is kinda bluesy, I loved it. When it came time for the encore, I yelled from the bandstand where we were sitting "Crocodile Rock!" I didn't want the evening to end till I heard that. He must have heard me... because he played it! I immediately jumped up and started grooving to the song, and even Robert joined me. It made my night!

Certainly puts a new feel to the holiday of Lag B'omer for me.

❤❤❤HUGE loving thank-yous go out to ❤❤❤

Adina and Elli, Ari and Chaim, Bracha and Macky, Dov V, Emily and Andy, Gabi and Haggai, Idit and Gordon, Jodie and Ken, Judy and Joe, Linda and Cliff, Lisa and Moshe, Marne R, Miriam and Jeff , Peter Kashin, Rivka and Steven, Ruth and Moshe, Sharon and Asher, Sharon and Neil, Shlomit and David, Tom Kashin, Michael and Lisa, Hedva and Jonathan.

"I never had me a better time, and I guess I never will!" (...from Crocodile Rock)

And I learned something new...

...that blinking/flashing lights can trigger a migraine for me. This was never true until a few months ago, when my migraines were getting really bad. I had been suspicious that driving at night gave me headaches, but I had so many headaches all the time, I couldn't tell what was a trigger and what was a result of already having a headache. At the concert, just for one song (thankfully) they had flashing lights, and from that point on I had to wear my sun glasses. (OK, actually, honestly, I just wanted to be like Elton John and wear my sun glasses. This is all just a clever story designed to justify my bizarre new habit of wearing sun glasses occasionally inside and/or at night. )

Since I had seen my neurologist the same day as the concert, I was freshly equipped with the assurance that taking Excedrin (or any OTC analgesics), up to twice a week is OK. I showed him my log of headaches since the hospitalization, and we counted eight days (in three weeks) which were headache-free. Not a terrific track record, and in his Israeli accented words, he threw in the phrase "you're not yet out of da woods".

So, when I felt *it* coming on at the concert, I took Excedrin. I had brought it with me just in case. I see that stuff as if it's poison, though... like if you have had food poisoning for many months, and you get better, then someone makes you that same food that made you sick, but beautiful and freshly prepared, you just can't eat it, no matter what. It brings bad associations. But, I took it because Dr. Ezra (neurologist) said it'd be fine.

It didn't help anyway. :(
By the bus ride back I had a strong headache, and by the time I crawled into bed, a migraine. It's interesting to have a migraine *and* Elton John songs going on simultaneously in your head. Medicated myself to sleep. I tried to get up in the morning; we were supposed to go back to Tel Aviv to renew the children's American passports for our upcoming trip (July). To do that, you have to bring both parents and all the kids who need passports. I woke up still with the migraine- that is the worst. There was no way I was going anywhere. Robert took the chance and went anyway. It is not so simple for all our kids to be in the same place at the same time during the week (on Shabbat it happens a lot, but can't get any business done on Shabbat, of course). So, Robert took the four kids to the Embassy. (I have to go to Tel Aviv myself on Tuesday just to sign the forms so they can process the kids' passports. Bleh.)

So after they left, I thought I'd sleep till noon, headache would pass, and I'd be Tinkerbell making everything perfect and sparkly for a surprise when they came home. I thought I'd have Shabbat food prepared, house cleaned, table set up for Shabbat when they returned.
Ummmmm....

~~~~~~~NOT!~~~~~~~~

Slept all day. I don't even know when they came home, I was sleeping. I never even got out of bed. Didn't eat, drink, nothing.
Again, Robert was able to rise to the occasion, made some quick chicken and green beans, threw together a soup, and planned on using left-overs. Remember, he had only returned from the US two days beforehand. Again... my hero. Thank Gd.

Since then, I've had a low hum of a headache. It's almost always there, kinda hiding out, but peeking. I am not taking anything for it, I am honestly at a loss for what to take. I could try Advil. But that is bad for kidneys. But my kidney tests came out mostly normal(ish). Dr. Ezra said I could take anything I wanted, but not more than twice a week, and not two days in a row. Maybe regular Tylenol. Or maybe nothing, I am getting used to the low hum of the headache. (but it makes me irritable) I hate taking more stuff. I know my body doesn't want it.

Don't yell at me, but I forgot to ask him about doing an MRI. He didn't mention it, and I forgot to ask. There were so many things to deal with, I just forgot. It's usually impossible to see him, unless I again perch myself outside his door on Wed at a certain time, so I guess I'll have to do that again. My next appointment isn't until August. I feel I need the peace of mind to know that there is nothing structurally visibly wrong with my brain to cause these headaches. Can't believe I forgot.

He wants to raise two of my medicines. I wasn't happy about that. I thought we were going toward getting off all the meds except the Cannabis. He said that's not his goal. His goal is for me to be functioning at a level that I can start playing horn again. I was surprised to hear that. I mean, when I met him over two years ago, I told him about myself, but haven't talked about that ever since. He had it in his mind the whole time. He wants to raise my nerve pain medicine (which I have taken for 8 years already for the nerve pain in my leg from NF), as well as another one which also works on nerve pain. I reminded him that we tried that already and it didn't work, and he answered with saying that I was on opiates at that time (Fentanyl), my body will react differently now to it. OK. I guess. He says that medicine that works on nerve pain will help my headaches. Makes sense, it's all the nervous system, but I just have a dream to be medication free. I don't think that's going to happen. When I asked him about the sleeping pill issue, he said to be patient. It's not time for that.

Sometimes we have to amend our dreams. If I can be headache free, and free from daily pain, I will be a better "me". I would like very much to start playing again. Life is short.

I've decided to splurge on a series of 10 massages with my favorite masseuse. Doctor's orders.
First one is tomorrow. Can't wait.

Friday, March 11, 2016

Strong and struggling

Sometimes I feel that something is Really Wrong. Other times I am so energized and able-bodied that I feel I can take on the world. And, when I feel those times, I do take on as much of the world as I possibly can. I've been working-out at the gym, and basically doing everything normal. There is that word again... it's a rather judgmental word, actually, right? I mean, nobody is normal. Only to *us*, "everyone else" is normal.

But since I've gone through much more, medically speaking, than most people, when I have ongoing symptoms, I have a tiny voice in the not-so-far-recesses of my psyche that something Big may be going on. Yet, I often choose to ignore it hoping it will go away. I have seen too many doctors, had too many surgeries, gotten too many diseases, and had too many scares to go dashing off to the doctor every time things are not quite right. Some may think quite the opposite- that I'd be the one to go dashing off to the doctor with every little symptom. But I am fed-up and jaded about doctors, and their tests. I've had enough surgeries, heavy medications, pain, infections, and rare diseases in the past eight years... it'll be nine soon... and the medical tests that go with that stuff, to last someone about 12 lifetimes. I am at the point that avoiding more conversations with doctors and more tests is my goal. To that goal, I am taking many vitamins and minerals (which I never used to do- I hate taking pills), trying to keep a good, balanced diet, working-out in a very healthy way, and trying my best to keep a good attitude about life.

But I gotta get to the bottom of what is going on with me.
I don't want to. I hate going to doctors, and I hate all the tests. Have I said that before? Ive been through too much. Today, while talking to Robert about my now-daily headaches starting first thing in the morning and lasting usually throughout the day, he asked me why I haven't seen my neurologist. My answer: I don't want to. He's an awesome person and doctor, I just don't want to chase him down to get in before my June appointment. I don't want to talk about problems and medications, go through tests. I know he will see me earlier- my history with him is that he will take me and give me a full consultation if he can, just when I pop my head into his office during his office hours. He was amazing during my withdrawal from Fentanyl. I just don't want to chase. I don't want to need anything medical. I am tired of it.

I need to get off the [eight years] of sleeping meds- I think that is a major cause of the headaches. I could be wrong, though, just my own theory. One of my doctors told me that the withdrawal from this sleeping pill (in the valuim family) may be worse than the withdrawal from the high doses of Fentanyl (morphine family) I was on for five years. I am so scared to make a real plan to start weaning from the sleeping pills. I'm actually terrified of it. And there isn't much I'm terrified of. I know that the times now that I have tried to cut down a teeny bit of a pill, I can't sleep. I've tried numerous times. My body *cannot* get into a deep sleep without the sleeping pill(s). It all started eight years ago when I had post-traumatic stress disorder (PTSD) and couldn't sleep at all, and was having horrific nightmares. A well-meaning psychiatrist put me on sleeping pills. I asked if I should take one on an SOS basis, and she said "no, you take one every night. That is the only way to get your body sleeping through the night again". And thus it began....

The past week, the first thing that goes into my digestive system in the morning is... Excedrin. I wake with a headache. Before this week, Excedrin and Zomig (my migraine medicine) have been part of my almost every day. My headaches are getting intolerable and more frequent.

That, along with two months of a consistent cough and sore throat, and I know I should be doing something about my health, but I don't want to. Don't worry, though, I will.

Remind me how is it that I question myself when it comes to the fact that I am not working at my careers?

Shabbat Shalom